<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[Transplant Families]]></title><description><![CDATA[Transplant Families]]></description><link>https://www.transplantfamilies.org/blog</link><generator>RSS for Node</generator><lastBuildDate>Sat, 09 May 2026 16:47:18 GMT</lastBuildDate><atom:link href="https://www.transplantfamilies.org/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Fighting for Her Heart, Twice: AnnaSophia's Story]]></title><description><![CDATA[AnnaSophia Berry has spent her entire life navigating the fragile balance between survival and the cost of survival. Born with complex congenital heart disease, she received her first heart transplant as an infant. Then, after a second transplant in June 2025, she was diagnosed with PTLD. This is her story.]]></description><link>https://www.transplantfamilies.org/post/fighting-for-her-heart-twice-annasophia-s-story</link><guid isPermaLink="false">69d6fc93c55f668b530586f8</guid><pubDate>Thu, 09 Apr 2026 01:10:49 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_7d35254caa574791821c2ac53c008cd9~mv2.jpg/v1/fit/w_304,h_399,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Meet IROC Family Partners: A Community Built for Families Like Yours]]></title><description><![CDATA[If you have been part of the pediatric kidney transplant community for a while, you may remember a group called the Community Engagement Workgroup, or CEW.  That group has grown into something even more powerful. Today, it is called IROC Family Partners , and Transplant Families is proud to call them one of our most trusted partners.  What is IROC Family Partners? IROC Family Partners is a patient and family-driven community within the Improving Renal Outcomes Collaborative (IROC) , a...]]></description><link>https://www.transplantfamilies.org/post/meet-iroc-family-partners-a-community-built-for-families-like-yours</link><guid isPermaLink="false">69c31bbab1bfd68174dfb946</guid><category><![CDATA[Kidney]]></category><category><![CDATA[TF Original]]></category><category><![CDATA[Resources]]></category><pubDate>Thu, 26 Mar 2026 22:59:10 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_f18f95e217c14a6b8458e4f54df7e9bc~mv2.png/v1/fit/w_940,h_788,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Built to Filter. Built to Fight.]]></title><description><![CDATA[Every kidney in this community has a story. A fight. A family who showed up every single day and kept showing up long after the hard part was supposed to be over. This March, during National Kidney Month, we want to honor that fight and give you something practical to carry with you.  And if you are here as a heart, liver, or multi-organ transplant family, this post is for you too. Kidney health is one of the most universal long-term concerns across all transplant types.  The medications that...]]></description><link>https://www.transplantfamilies.org/post/built-to-filter-built-to-fight</link><guid isPermaLink="false">69c3130c149f4fed56502d2d</guid><category><![CDATA[Kidney]]></category><category><![CDATA[TF Original]]></category><category><![CDATA[Resources]]></category><pubDate>Thu, 26 Mar 2026 01:42:31 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_7f29a329804641f6b8ed7f686bb6a05d~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Help shape better transition support: ISHLT survey for young adult heart and lung transplant recipients and caregivers]]></title><description><![CDATA[If your child received a heart or lung transplant as a kid, you already know that growing up with transplant is not a straight line. At some point, the questions change. Communication changes. Independence grows. The medical team changes. And for many families, the transition from pediatric to adult care can feel like a whole new chapter to navigate. The International Society for Heart and Lung Transplantation (ISHLT) Pediatric to Adult Transition Taskforce , in collaboration with Ann &#38;...]]></description><link>https://www.transplantfamilies.org/post/help-shape-better-transition-support-ishlt-survey-for-young-adult-heart-and-lung-transplant-recipie</link><guid isPermaLink="false">699f9d26dcfe76b0f2d3bd8b</guid><pubDate>Thu, 26 Feb 2026 01:19:36 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_39d3f6653ec848b9bcc2a0748edcc926~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[MiTALE Study: Young adult transplant voices needed (ages 18–30)]]></title><description><![CDATA[If you are a young adult who has grown up with transplant, or you love a young adult who has, you already know this stage is its own kind of journey. College or work. Insurance. Med independence. Dating. Mental load. Explaining your story to new people. Finding your people. This study is a chance for young adults to connect with others who “get it,” and to share lived experience in a way that can shape better support for the next group coming up behind them. Parents and caregivers of young...]]></description><link>https://www.transplantfamilies.org/post/mitale-study-young-adult-transplant-voices-needed-ages-18-30</link><guid isPermaLink="false">699f978391604ab56c35fbca</guid><pubDate>Thu, 26 Feb 2026 00:48:38 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_4de332226b414122b2b5e9c11fc6a8ad~mv2.png/v1/fit/w_702,h_893,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Love Always Wins]]></title><description><![CDATA[We see love everywhere in this community. We see it in the chair that never leaves the bedside, in the parent who knows the numbers and the routines by heart, and in the way families keep showing up even when they are running on empty. In transplant, love is not abstract.  It is action. In the transplant world, love doesn’t show up as a perfect movie moment. It shows up in the ordinary bravery of parents who keep a bedside rhythm going for weeks or months at a time. Love looks like learning...]]></description><link>https://www.transplantfamilies.org/post/love-always-wins</link><guid isPermaLink="false">699f929b1e425c151a8e96b6</guid><pubDate>Thu, 26 Feb 2026 00:35:41 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/354eb30ecf064ae7a5fff5dc06ab3b1e.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Fortnite Gamers, This One’s for You]]></title><description><![CDATA[Are your kids Fortnite gamers? Here’s their chance to support research in pediatric transplant while playing the games they love. This Heart Month, an innovative new quest inside Fortnite’s Super Pet World is blending storytelling, empathy, and real-world impact in a way we have never seen before. Enduring Hearts  has partnered with Ghost Gaming to launch a limited-time experience called “Side Quest: Heartbeat on the Wind.”  The quest invites players into the story of Alice, a young girl...]]></description><link>https://www.transplantfamilies.org/post/fortnite-gamers-this-one-s-for-you</link><guid isPermaLink="false">698e72aee530e682e43958ae</guid><pubDate>Fri, 13 Feb 2026 14:30:11 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_0038fe8c3051499380790a12ec16fe2f~mv2.jpg/v1/fit/w_1000,h_799,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[We Want Your Transplant Child’s Artwork Featured in a National Guidebook]]></title><description><![CDATA[Attention: Heart Transplant Families At Transplant Families, we believe children and caregivers deserve to see themselves reflected in the resources designed to support them. The Pediatric Heart Transplant Society (PHTS)  Guidebook Revision Group is currently inviting original artwork created by children and youth to be featured in the upcoming edition of the PHTS Guidebook . What is PHTS? The Pediatric Heart Transplant Society is a collaborative network of pediatric heart transplant centers...]]></description><link>https://www.transplantfamilies.org/post/we-want-your-transplant-child-s-artwork-featured-in-a-national-guidebook</link><guid isPermaLink="false">698e566a31ffa9c24362b306</guid><pubDate>Thu, 12 Feb 2026 22:41:24 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_f2e8fbbf638348fcb0abde0314373566~mv2.png/v1/fit/w_199,h_260,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Permission to Pause]]></title><description><![CDATA[January is usually a time when we talk about wellness. Fresh starts. New routines. Hopeful resets. This year feels different. Across the transplant community and the broader medical world, many of us are carrying a level of heaviness that cannot be fixed with a gratitude list or a deep breath. Families are navigating chronic stress, uncertainty, and fear. Clinicians and researchers are facing defunded programs, stalled progress, and growing public distrust of medicine. Measles outbreaks are...]]></description><link>https://www.transplantfamilies.org/post/permission-to-pause</link><guid isPermaLink="false">697a7a7bff1fc7c00332c700</guid><pubDate>Thu, 29 Jan 2026 13:00:23 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_172bbbe4356340599030043054f4bb1d~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Low-Stress Celebration Ideas for Transplant Families]]></title><description><![CDATA[Celebrations shouldn’t add pressure — especially during a month full of expectations, emotions, and unpredictability. For transplant families, the most meaningful holiday traditions are often the simplest ones. Here are gentle, low-stress ways to create connection and comfort without overwhelming your child or yourself. 1. Make your own definition of “holiday magic” Your holiday doesn’t have to look like anyone else’s. If your child needs rest, stability, or quieter routines, keep festivities...]]></description><link>https://www.transplantfamilies.org/post/low-stress-celebration-ideas-for-transplant-families</link><guid isPermaLink="false">693a3d149c4bc26e8039d1af</guid><pubDate>Fri, 12 Dec 2025 17:51:06 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/11062b_0cbdec6aa5a643d88b1733e6a5107168~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[ Holiday Health Hacks: Staying Well All Season]]></title><description><![CDATA[Winter Wellness Tips for Transplant Families The holidays are here — a time filled with cozy nights, glittering lights, family traditions, and joyful surprises! But for transplant families, the season also brings extra challenges like cold and flu germs, busy schedules, and sometimes stressful travel or gatherings. That’s why a little preparation can go a long way in helping your child stay healthy, comfortable, and confident all season long. ✨ Whether you’re celebrating big or keeping...]]></description><link>https://www.transplantfamilies.org/post/holiday-health-hacks-staying-well-all-season</link><guid isPermaLink="false">692cd86f2bc8fd382e6eb612</guid><pubDate>Thu, 11 Dec 2025 17:38:06 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/44fd93_f8e3e526f81543b593a33b2a30045440~mv2.png/v1/fit/w_600,h_200,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>Jennifer Henze</dc:creator></item><item><title><![CDATA[Research Watch: The Science of Gratitude and Health]]></title><description><![CDATA[For many transplant families, gratitude becomes more than a feeling — it’s a daily rhythm. Between hospital visits, medication schedules, and school pickups, the quiet moments of thankfulness often hold the most meaning. This month, we celebrate the everyday acts of gratitude  that sustain our community. Gratitude might look like a parent thanking a nurse who goes the extra mile, a donor family lighting a candle for the child they loved, or a teen transplant recipient writing their first...]]></description><link>https://www.transplantfamilies.org/post/research-watch-the-science-of-gratitude-and-health</link><guid isPermaLink="false">690d3dbccfbfd61d9a1ec3f0</guid><pubDate>Sat, 15 Nov 2025 23:32:15 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/nsplsh_c78e8f54085c401b83362aeb18d18228~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Spotlight: Bonus Days Magazine — Art, Resilience, and the Transplant Journey]]></title><description><![CDATA[We’re thrilled to spotlight Bonus Days Magazine , a beautifully artistic publication that celebrates life before and after transplant with features for teens, parents, and adult recipients . Every issue feels like a gallery filled with powerful photography, intimate essays, and practical wisdom from people who truly get it . Why this magazine is different At the helm is Editor in Chief Alison Conklin , a professional photographer and adult heart transplant recipient  who was diagnosed with...]]></description><link>https://www.transplantfamilies.org/post/spotlight-bonus-days-magazine-art-resilience-and-the-transplant-journey</link><guid isPermaLink="false">690e920896a2942ab27f5baf</guid><pubDate>Thu, 13 Nov 2025 23:25:30 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_6376a66e6bf94555b419e61974957c7d~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Baby Moses - A Miracle at Loma Linda]]></title><description><![CDATA[When the team at Loma Linda University Children’s Hospital first met baby Eddie “Moses” Anguiano in 1985, his future was uncertain. Born with a rare and fatal heart condition, he spent his earliest days surrounded by wires, monitors, and the quiet strength of his parents and care team. At just four days old , Eddie became the first baby in the world to receive a successful human-to-human infant heart transplant . The surgery took place on November 20, 1985 , under the leadership of pioneering...]]></description><link>https://www.transplantfamilies.org/post/baby-moses-a-miracle-at-loma-linda</link><guid isPermaLink="false">690d3cf296a2942ab27cc4be</guid><pubDate>Sat, 08 Nov 2025 02:43:24 GMT</pubDate><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[We want to know your thoughts on Patient and Family Advocacy in Transplantation.]]></title><description><![CDATA[If you are interested in participating, please click the link below to complete the survey: https://redcap.nyumc.org/apps/redcap/surveys/?s=YWR88X3PHHLJW8MX]]></description><link>https://www.transplantfamilies.org/post/we-want-to-know-your-thoughts-on-patient-and-family-advocacy-in-transplantation</link><guid isPermaLink="false">690022c4e3b0149559d2865c</guid><pubDate>Tue, 28 Oct 2025 16:05:16 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_0eaaa1f7418745c9a820d9cb4e099405~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Safer Halloween and low-key fall fun]]></title><description><![CDATA[You know your child best—pick what fits, skip the rest, and keep the joy. Here are simple ideas and links to a few of our favorite past TF guides. Trick-or-treating, simplified Costumes that move with you (breathable layers, comfy shoes) Shorter routes, earlier hours, well-lit areas Pre-wrapped treats only, or try a fun candy-swap  at home Teal Pumpkin  = non-food treats welcome and inclusive Low-energy options: porch “wave-by,” driveway trick-or-treat, movie-night + treat buckets From our...]]></description><link>https://www.transplantfamilies.org/post/safer-halloween-and-low-key-fall-fun</link><guid isPermaLink="false">68f1993050873aaf5db0b3ea</guid><pubDate>Tue, 21 Oct 2025 00:33:24 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/11062b_88a9f17fe79544888202b66c5ddb431a~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Research Watch: Early “universal” organ work (ABO)]]></title><description><![CDATA[Why this matters You may have seen in the news lately that scientists are testing ways to convert some donor organs toward a more “universal” blood type. It’s very early—not in pediatric practice yet—but it could one day help more kids match faster. Watch our webinar Why ABO matching matters for families → https://www.youtube.com/watch?v=HfXX5BSiUnA Read more UBC release (first human test context): https://news.ubc.ca/2025/10/universal-organ-transplant/ Nature overview (background + caveats):...]]></description><link>https://www.transplantfamilies.org/post/research-watch-early-universal-organ-work-abo</link><guid isPermaLink="false">68f19be645ad628271275fc3</guid><pubDate>Sat, 18 Oct 2025 15:33:07 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/f6b4aa27c2d545a9bebe3b23212af6b0.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[What are SGLT2 inhibitors? A caregiver’s primer (with Q&#38;A)]]></title><description><![CDATA[A big thank you to all who joined us live for this session!  SGLT2 inhibitors are medicines first used in diabetes and heart health. Clinicians are exploring where they might fit in transplant care. Here’s a quick orientation and questions to bring to clinic. What you’ll learn in the session What “SGLT2” means and why it’s being discussed Potential benefits/risks teams watch for How labs and follow-up might change if used Smart questions to bring to your next visit Watch the webinar...]]></description><link>https://www.transplantfamilies.org/post/what-are-sglt2-inhibitors-a-caregiver-s-primer-with-q-a</link><guid isPermaLink="false">68f19abb60ceb7e0d1011416</guid><pubDate>Fri, 17 Oct 2025 15:28:06 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_d97121708a7c415eac7f29aa4cf8d619~mv2.png/v1/fit/w_800,h_450,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Respiratory-season prep for transplant families]]></title><description><![CDATA[Fall means more indoor time and more germs. For kids on immunosuppression, a few small habits—done consistently—go a long way. Your simple safety rhythm Post your sick-day plan.  Keep clinic and after-hours numbers on the fridge (template below). Refresh hand hygiene + masks as needed.  Busy indoor spaces or sick season? Pack your Tiny Clean Kit. Ventilate when you can.  Crack a window in carpools and gatherings. Keep routine care on track.  If you’re due for vaccines or well-checks, ask your...]]></description><link>https://www.transplantfamilies.org/post/respiratory-season-prep-for-transplant-families</link><guid isPermaLink="false">68f191bc27064b4fa44c7e8a</guid><pubDate>Fri, 17 Oct 2025 01:10:46 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_4d38009be9bf459d971d6d125a99de19~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item><item><title><![CDATA[Upcoming Webinar: SGLT2 Inhibitors for Transplant Recipient Kids]]></title><description><![CDATA[October 13, 2025 | 3 PM ET / 12 PM PT | Online You may have heard the name, but what exactly are SGLT2 inhibitors—and why are they...]]></description><link>https://www.transplantfamilies.org/post/upcoming-webinar-sglt2-inhibitors-for-transplant-recipient-kids</link><guid isPermaLink="false">68db2def623250c45f5fd39a</guid><pubDate>Tue, 30 Sep 2025 01:12:18 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/a5f930_d97121708a7c415eac7f29aa4cf8d619~mv2.png/v1/fit/w_800,h_450,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>TFAdmin</dc:creator></item></channel></rss>