COVID-19 RESOURCES

Trusted resources for our pediatric transplant community

 

Documents that Transplant Families was consulted with are designated with an asterisk *

FOR PARENTS - COVID-19 Q&A PANEL WITH ORGAN FAILURE/TRANSPLANT EXPERTS, HOSTED BY TRANSPLANT FAMILIES

Transplant Families, in partnership with several pediatric transplant centers and professional organizations, will be hosting a COVID-19 Question & Answer session to help address your concerns as it pertains to the virus and pediatric transplant community.  Please register for complete agenda.  Remember to submit questions in advance to qanda@transplantfamilies.org .

ACTION LEARNING NETWORK, PHTS (PEDIATRIC HEART TRANSPLANT SOCIETY), AND STARZL PATIENT AND FAMILY VOICE NETWORK

We are proud to continue to work with ACTION Learning Network, PHTS, and Starzl Network to create this set of living documents.  Family feedback was an integral part of forming this FAQ.  Some of these are documents are being updated on a regular basis (weekly, if not daily).  Lots of great infographics to share via social media.

UNOS (UNITED NETWORK FOR ORGAN SHARING)

http://unos.org/news/member-information-regarding-Covid-19

Please visit our friends at UNOS to see the daily updates for COVID-19 and transplant.

AST (AMERICAN SOCIETY FOR TRANSPLANTATION)

Information regarding COVID-19 is changing rapidly. This document will be updated as able with new information. Please contact your transplant center with specific concerns. A PDF version of this information can be found here. A PDF version of this information can be found here.

To access this resource in Spanish, please click here

COVIBOOK - COLORING BOOK FOR KIDS

Available in 22 languages

Manuela Molina has come up with the best coloring book for children to help alleviate fears and inform children on COVID-19. Visit the website for more information https://www.mindheart.co/descargables


English booklet here: https://660919d3-b85b-43c3-a3ad-3de6a9d37099.filesusr.com/ugd/64c685_319c5acf38d34604b537ac9fae37fc80.pdf

CCF COVID Q & A ADDITIONAL ANSWERS

Presented by Children's Cardiomyopathy Foundation

Children's Cardiomyopathy Foundation recently held a Q & A regarding COVID and heart failure/heart transplant families.  We are including additional questions that families asked.  Dr. Hsu and Dr. Aldrich were presenters and graciously answered questions before and after.  The original recording can be found at https://youtu.be/n2f4n0p4EZw

 

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