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SCHOOL SUPPORT

Early Intervention

Image by Element5 Digital

Girl Drawing

OVERVIEW OF EARLY INTERVENTION PROGRAM

What is IDEA? Overview of IDEA

http://www.parentcenterhub.org/idea/

What is EI?

http://www.parentcenterhub.org/ei-overview/

Does my child need EI?

http://www.parents.com/toddlers-preschoolers/development/problems/early-intervention/

How do I qualify for Early Intervention in my state?

http://ectacenter.org/contact/ptccoord.asp

Welcome to Early Intervention – Now how do I qualify?

EI for Transplant Families

http://pediatrics.aappublications.org/content/pediatrics/132/4/e1073.full.pdf

Vaccines 101 for transplant families (using measles as the example) – https://rems.ed.gov/docs/ED_Measles_OCR_fact_sheet_2015-3-6_Clean_508.pdf

docs/ED_Measles_OCR_fact_sheet_2015-3-6_Clean_508.pdf

Autism Therapy

THERAPISTS

Speech – http://www.asha.org/slp/clinical/EarlyIntervention/
Occupational Therapy – https://www.aota.org/About-Occupational-Therapy/Professionals/CY/Articles/Early-Intervention.aspx
Physical Therapy – http://www.moveforwardpt.com/Default.aspx
- https://pediatricapta.org/special-interest-groups/early-intervention/pdfs/Role%20of%20PT%20in%20EI.pdf
Feeding Therapy – http://yourkidstable.com/feeding-therapy/
- http://www.friendshipcircle.org/blog/2014/01/22/10-things-you-should-know-about-feeding-therapy/
Other Therapy – http://www.familyresourceguide.org/early-intervention/types-therapies.aspx
Developmental Therapy – https://www.healthychildren.org/English/family-life/health-management/pediatric-specialists/pages/What-is-a-Developmental-Behavioral-Pediatrician.aspx

Kids in Preschool

PRE-SCHOOL AND ELEMENTARY SCHOOL

How to ask your transplant team for what you need at school – http://smallbeats.childrensomaha.org/back-to-school-tips-for-heart-kids-part-1-staying-healthy-in-the-classroom/
What is the difference between a 504 and an IEP and why do I need either? –http://smallbeats.childrensomaha.org/children-heart-conditions-504-plans-school/
Children’s Cardiomyopathy Foundation guide to 504’s and IEP’s – http://www.childrenscardiomyopathy.org/site/images/publications/sample.pdf
- http://www.childrenscardiomyopathy.org/site/images/publications/parents.pdf

Public vs Private vs Charter school – https://www.understood.org/en/school-learning/choosing-starting-school/finding-right-school/6-things-to-know-about-private-schools-and-special-education
When your homebound with medical issues – http://smallbeats.childrensomaha.org/help-heart-kids-keep-miss-school/
PTI (Parent Training and Information Center) Support – http://www.parentcenterhub.org/find-your-center/

Classroom Lecture

JUNIOR HIGH AND HIGH SCHOOL

Beginning transition and encouraging your child taking control of their care – https://www.myast.org/communities-practice/pediatric/web-resources-transition-adult-care
- http://www.gottransition.org/
Recognizing depression and anger in your child and when to get help – https://medlineplus.gov/ency/patientinstructions/000648.htm
Transition recommendation from AST – https://www.myast.org/communities-practice/pediatric/web-resources-transition-adult-care
- https://www.myast.org/education/specialty-resources/peds-transition
Playing sports and how to ask for modifications – http://smallbeats.childrensomaha.org/can-kids-heart-transplant-exercise-play-sports/

College Campus

COLLEGE AND BEYOND

College and phasing out of 504/IEP to complete independence – https://www.understood.org/en/school-learning/choosing-starting-school/leaving-high-school/are-there-ieps-and-504-plans-in-college
If college is out of state – know your new transplant team and center
What are your rights as a transplant recipient entering the job market and as an employee – https://www.workplacefairness.org/
From AST What jobs you should look for http://onlinelibrary.wiley.com/doi/10.1111/ajt.12121/pdf

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