OVERVIEW OF EARLY INTERVENTION PROGRAM
What is IDEA? Overview of IDEA
What is EI?
Does my child need EI?
How do I qualify for Early Intervention in my state?
Welcome to Early Intervention – Now how do I qualify?
EI for Transplant Families
Vaccines 101 for transplant families (using measles as the example) – https://rems.ed.gov/docs/ED_Measles_OCR_fact_sheet_2015-3-6_Clean_508.pdf
Physical Therapy – http://www.moveforwardpt.com/Default.aspx
Feeding Therapy – http://yourkidstable.com/feeding-therapy/
PRE-SCHOOL AND ELEMENTARY SCHOOL
How to ask your transplant team for what you need at school – http://smallbeats.childrensomaha.org/back-to-school-tips-for-heart-kids-part-1-staying-healthy-in-the-classroom/
What is the difference between a 504 and an IEP and why do I need either? –http://smallbeats.childrensomaha.org/children-heart-conditions-504-plans-school/
Children’s Cardiomyopathy Foundation guide to 504’s and IEP’s – http://www.childrenscardiomyopathy.org/site/images/publications/sample.pdf
Public vs Private vs Charter school – https://www.understood.org/en/school-learning/choosing-starting-school/finding-right-school/6-things-to-know-about-private-schools-and-special-education
When your homebound with medical issues – http://smallbeats.childrensomaha.org/help-heart-kids-keep-miss-school/
PTI (Parent Training and Information Center) Support – http://www.parentcenterhub.org/find-your-center/
JUNIOR HIGH AND HIGH SCHOOL
Beginning transition and encouraging your child taking control of their care – https://www.myast.org/communities-practice/pediatric/web-resources-transition-adult-care
Recognizing depression and anger in your child and when to get help – https://medlineplus.gov/ency/patientinstructions/000648.htm
Transition recommendation from AST – https://www.myast.org/communities-practice/pediatric/web-resources-transition-adult-care
Playing sports and how to ask for modifications – http://smallbeats.childrensomaha.org/can-kids-heart-transplant-exercise-play-sports/
COLLEGE AND BEYOND
College and phasing out of 504/IEP to complete independence – https://www.understood.org/en/school-learning/choosing-starting-school/leaving-high-school/are-there-ieps-and-504-plans-in-college
If college is out of state – know your new transplant team and center
What are your rights as a transplant recipient entering the job market and as an employee – https://www.workplacefairness.org/
From AST What jobs you should look for http://onlinelibrary.wiley.com/doi/10.1111/ajt.12121/pdf