top of page

Stacy Hillenburg

Stacy Hillenburg

Secretary / Director of Communications

Caregiver to Heart Transplant Recipient

Stacy Hillenburg is mom to Ben, a 12-year-old Heart transplant recipient. Ben received his gift at 7 weeks old. He also has two older sisters, Klara and Abby. In addition to being on the Board of Transplant Families, Stacy is also the Secretary and Director of Communications. Stacy has also been a Developmental Therapist in Early Intervention for just over 12 years now. She is an independent contractor at Right Start Pediatric Therapies. Due to her qualifications, she helps out with educational webinars, articles, and any other necessary items for Transplant Families. She has a certification in Infant/Toddler brain architecture from Zero to Three. Before she worked as a Developmental Therapist, she was an Early Childhood Special Education Teacher for 4 years. She also does some advocacy for families at individualized educational program (IEP) meetings on an as-needed basis. She is a member of the Illinois Developmental Therapists Association (IDTA), and a member of The Council for Exceptional Children (CEC), The Division for Early Childhood (a part of the CEC), Zero to Three, and the Ounce of Prevention Fund. She brings her expertise in early education as an added bonus to many of our families who have questions on education topics from early education through college.  Stacy also authored portions of "What Every Parent Needs to Know" published by the United Network of Organ Sharing (UNOS)/ Organ Procurement and Transplantation Network (OPTN).

bottom of page