Trusted resources for our pediatric transplant community.
Due to immunosuppression medications, children with transplants are at a higher risk for contracting infectious diseases. Those may include, but are not limited to: COVID-19, Epstein-Barr Virus, Cytomegalovirus, BK Virus, Measle, Mumps and Rubella, and Polio. Please refer to this presentation from our 2023 Pediatric Transplant Conference: https://www.youtube.com/watch?v=sAt52RA2j2c&list=PLjEHaHI-8r9OMPxK1qwqFQM-DeF5mUvt1&index=4
You may also wish to consult The Pediatric Infectious Disease Society: https://pids.org/ or contact us at: firstname.lastname@example.org if you have additional questions and we will do our best to answer them.
Transplant Families was consulted on the production of the following documents:
SOLID ORGAN TRANSPLANTATION (SOT) SUMMARY POINTS FOR SCHOOL ENTRY RELEASED BY PEDIATRIC INFECTIOUS DISEASE SOCIETY (PIDS) AND SUPPORTED BY PEDIATRIC TRANSPLANT SOCIETIES.
The statement summarizes available evidence, best practices, and consensus recommendations around key questions including:
Review of host-related factors allowing for individual risk stratification for children who may be at higher potential risk
Review of community and public health considerations that may impact the decision of returning to school in person
School-related considerations including preparedness and optimal infection prevention measures to mitigate risk
Review of the available published literature re: COVID-19 in pediatric SOT and school experience during the pandemic thus far
FOR PARENTS - COVID-19 Q&A PANEL WITH ORGAN FAILURE/TRANSPLANT EXPERTS, HOSTED BY TRANSPLANT FAMILIES
Transplant Families, in partnership with several pediatric transplant centers and professional organizations, will be hosting a COVID-19 Question & Answer session to help address your concerns as it pertains to the virus and pediatric transplant community. Please register for complete agenda. Remember to submit questions in advance to email@example.com .
ACTION LEARNING NETWORK, PHTS (PEDIATRIC HEART TRANSPLANT SOCIETY), AND STARZL PATIENT AND FAMILY VOICE NETWORK
We are proud to continue to work with ACTION Learning Network, PHTS, and Starzl Network to create this set of living documents. Family feedback was an integral part of forming this FAQ. Some of these are documents are being updated on a regular basis (weekly, if not daily). Lots of great infographics to share via social media.
UNOS (UNITED NETWORK FOR ORGAN SHARING)
Please visit our friends at UNOS to see the daily updates for COVID-19 and transplant.
AST (AMERICAN SOCIETY FOR TRANSPLANTATION)
Information regarding COVID-19 is changing rapidly. This document will be updated as able with new information. Please contact your transplant center with specific concerns. A PDF version of this information can be found here. A PDF version of this information can be found here.
To access this resource in Spanish, please click here.
COVIBOOK - COLORING BOOK FOR KIDS
Available in 22 languages
Manuela Molina has come up with the best coloring book for children to help alleviate fears and inform children on COVID-19. Visit the website for more information https://www.mindheart.co/descargables
CCF COVID Q & A ADDITIONAL ANSWERS
Presented by Children's Cardiomyopathy Foundation
Children's Cardiomyopathy Foundation recently held a Q & A regarding COVID and heart failure/heart transplant families. We are including additional questions that families asked. Dr. Hsu and Dr. Aldrich were presenters and graciously answered questions before and after. The original recording can be found at https://youtu.be/n2f4n0p4EZw