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Research Watch: The Science of Gratitude and Health
For many transplant families, gratitude becomes more than a feeling — it’s a daily rhythm. Between hospital visits, medication schedules, and school pickups, the quiet moments of thankfulness often hold the most meaning. This month, we celebrate the everyday acts of gratitude that sustain our community. Gratitude might look like a parent thanking a nurse who goes the extra mile, a donor family lighting a candle for the child they loved, or a teen transplant recipient writing

TFAdmin
6 days ago2 min read


Spotlight: Bonus Days Magazine — Art, Resilience, and the Transplant Journey
We’re thrilled to spotlight Bonus Days Magazine , a beautifully artistic publication that celebrates life before and after transplant with features for teens, parents, and adult recipients . Every issue feels like a gallery filled with powerful photography, intimate essays, and practical wisdom from people who truly get it . Why this magazine is different At the helm is Editor in Chief Alison Conklin , a professional photographer and adult heart transplant recipient who was

TFAdmin
Nov 132 min read
Baby Moses - A Miracle at Loma Linda
When the team at Loma Linda University Children’s Hospital first met baby Eddie “Moses” Anguiano in 1985, his future was uncertain. Born with a rare and fatal heart condition, he spent his earliest days surrounded by wires, monitors, and the quiet strength of his parents and care team. At just four days old , Eddie became the first baby in the world to receive a successful human-to-human infant heart transplant . The surgery took place on November 20, 1985 , under the leaders

TFAdmin
Nov 72 min read


We want to know your thoughts on Patient and Family Advocacy in Transplantation.
If you are interested in participating, please click the link below to complete the survey: https://redcap.nyumc.org/apps/redcap/surveys/?s=YWR88X3PHHLJW8MX

TFAdmin
Oct 281 min read


Safer Halloween and low-key fall fun
You know your child best—pick what fits, skip the rest, and keep the joy. Here are simple ideas and links to a few of our favorite past TF guides. Trick-or-treating, simplified Costumes that move with you (breathable layers, comfy shoes) Shorter routes, earlier hours, well-lit areas Pre-wrapped treats only, or try a fun candy-swap at home Teal Pumpkin = non-food treats welcome and inclusive Low-energy options: porch “wave-by,” driveway trick-or-treat, movie-night + treat bu

TFAdmin
Oct 201 min read


Research Watch: Early “universal” organ work (ABO)
Why this matters You may have seen in the news lately that scientists are testing ways to convert some donor organs toward a more “universal” blood type. It’s very early—not in pediatric practice yet—but it could one day help more kids match faster. Watch our webinar Why ABO matching matters for families → https://www.youtube.com/watch?v=HfXX5BSiUnA Read more UBC release (first human test context): https://news.ubc.ca/2025/10/universal-organ-transplant/ Nature overview (backg

TFAdmin
Oct 181 min read


What are SGLT2 inhibitors? A caregiver’s primer (with Q&A)
A big thank you to all who joined us live for this session! SGLT2 inhibitors are medicines first used in diabetes and heart health. Clinicians are exploring where they might fit in transplant care. Here’s a quick orientation and questions to bring to clinic. What you’ll learn in the session What “SGLT2” means and why it’s being discussed Potential benefits/risks teams watch for How labs and follow-up might change if used Smart questions to bring to your next visit Watch the

TFAdmin
Oct 171 min read


Respiratory-season prep for transplant families
Fall means more indoor time and more germs. For kids on immunosuppression, a few small habits—done consistently—go a long way. Your simple safety rhythm Post your sick-day plan. Keep clinic and after-hours numbers on the fridge (template below). Refresh hand hygiene + masks as needed. Busy indoor spaces or sick season? Pack your Tiny Clean Kit. Ventilate when you can. Crack a window in carpools and gatherings. Keep routine care on track. If you’re due for vaccines or well

TFAdmin
Oct 162 min read


Upcoming Webinar: SGLT2 Inhibitors for Transplant Recipient Kids
October 13, 2025 | 3 PM ET / 12 PM PT | Online You may have heard the name, but what exactly are SGLT2 inhibitors—and why are they...

TFAdmin
Sep 291 min read


Longer Wait Times on the Pediatric Transplant List: You're Not Imagining It
As our kids head back to school and we all settle into new routines, many families in our community are facing a very different kind of...

TFAdmin
Sep 293 min read


Father's Day Tribute: Dads and the Transplant Journey
🔥 Father’s Day Tribute: Dads & the Transplant Journey 🔥 Today, we raise our hands and our hearts in honor of a special group of...
Jennifer Henze
Jun 151 min read


Spring Cleaning for the Mind: Decluttering Stress
Spring cleaning takes on a whole new meaning when you're caring for a medically complex child. It's not just about tidying closets or...
Jennifer Henze
May 213 min read


Thank You For a Successful 2025 Pediatric Transplant Conference
Thank you so much for joining us for our 2025 Pediatric Transplant Conference. We want to extend our deepest gratitude to all of our...

TFAdmin
May 201 min read


Mental Health Awareness Month: Coping Strategies
May is Mental Health Awareness Month. The transplant journey—whether you're a recipient, donor, or caregiver—comes with emotional highs...
Jennifer Henze
May 192 min read


Transplant Fitness Challenge: March Into Fitness
This month-long challenge is designed to encourage movement, build strength, and promote a healthy lifestyle tailored to the unique needs...
Jennifer Henze
Mar 172 min read


Sparkey, Sunny, and Strength: Living Fully After Kidney Transplant
Written by Leslie Wyers, mom to three amazing kids, two of which are kidney transplant recipients. Leslie also is a board member for...

TFAdmin
Mar 145 min read


Measles Action Plan: For Transplant Families
DASHBOARD OF CURRENT CASES: Measles Cases and Outbreaks | Measles (Rubeola) | CDC **More important resources and videos at the end of...

TFAdmin
Mar 114 min read


A heart full of hope: Juliana’s journey
Today, we highlight the inspiring story of Juliana and her family, a testament to the power of hope, medical innovation, and the profound...

TFAdmin
Feb 273 min read


Unraveling the Lifesaving Collaboration: How HRSA, OPTN, and the Transplant Network Work Together
Written by Melissa McQueen and Jen Lau **There have been a lot of changes in our nation's transplant system in the past year. And there...

TFAdmin
Jan 284 min read
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