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MY CHILD IS LISTED AND WAITING

Through our Support Services, we have the potential to make a real and positive change in the community. This is one of our key areas of focus here at Transplant Families, and a source of much success for our Non-Profit Organization. Get in touch with us today and see how you can lend a helping hand with this program.

 

BONE MARROW

Cancer and Blood Disorder Supports

 
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BE THE MATCH

Learn the many ways we help patients find their life-saving marrow donors and provide support throughout the transplant process.

AMANDA'S HOPE RAINBOW ANGELS

Our Mission is to bring dignity and comfort into the harsh world of childhood cancer and other life-threatening diseases.

KIDNEY

Originating Diagnosis and Kidney Failure Supports

 
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NATIONAL KIDNEY FOUNDATION

Fueled by passion and urgency, National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.

HEART

Originating Diagnosis and Heart Failure Supports

 

CHILDREN'S CARDIOMYOPATHY FOUNDATION

CCF offers a variety of ways for families affected by pediatric cardiomyopathy to access information and resources, as well as share experiences and provide support to each other. A summary of CCF's Family Resources and Support Services can be downloaded here. For a listing in Spanish, click here.

SISTERS BY HEART

We are a volunteer organization that strives to help moms with newly-diagnosed babies.  We provide care packages to make your stay in the hospital a little easier.  We also provide information and links to many resources to help you better understand HLHS. All our volunteers are moms with children who have HLHS and who understand what you are going through.  We are here to help!

MENDED LITTLE HEARTS

Mended Little Hearts is non-profit, volunteer-led program providing hope and support to children, patients and families affected by congenital heart disease.

Their Mission is to empower families affected by congenital heart disease (CHDs) through peer-to-peer support services, education, connecting families with resources, creating awareness and advocacy.

ACTION LEARNING NETWORK

Resources serve as an integral part of our mission to bring patients and families together. They provide stories of success and offer information on the medical devices used across our pediatric centers.

Please see below for links to support groups and social media platforms, as well as patient stories from several of our participating institutions, and helpful industry information links for patient and caregivers. 

Read more "About ACTION" for patients and families.

LIVER

Originating Diagnosis and Liver Failure Supports

 
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AMERICAN LIVER FOUNDATION

ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.

STARZL NETWORK

he Starzl Network for Excellence in Pediatric Transplantation aims to give all children access to the best care. And we strive to continually “make the best better.”

You can get involved in a few ways:

  • Join our team. View updates from the inaugural meeting below and check back for future information.

  • Research ideas. Give us your ideas for transplant-related research. We'd love to hear from you.

  • Share your story. Tell us your transplant family story. We want to hear it! And we’ll share it on our website and social media channels.

To get involved in the Starzl Transplant Network, email us at starzlnetwork@gmail.com.

LUNG

Originating Diagnosis and Lung Failure Supports

 
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PULMONARY HYPERTENSION ASSOCIATION

Together, we can and must improve the quality of care for kids living with PH and support the families affected by this disease.

©2020 by Transplant Families, Inc.  All rights reserved.  Transplant Families is a 501(c)(3) non-profit organization.