We’d like to share a wonderful, exciting opportunity for patients and family members to help shape STARZL’s patient-centered research mission! As you may know, we have been awarded the PCORI (patient-centered outcomes research institute) grant that will enable us to engage families and providers in learning more about research that aims to answer questions that matter most to you, your children, and the pediatric liver transplant community!
We’re currently seeking advisory board members — YOU (parents, patients over 18) — for this effort...for participation and insightful feedback! Time commitment: 1 hr virtual mtg/3 months; 30 mins survey/3 months, over 2 years. Participation is compensated w/gift cards and $60/mtg and $30/survey. Please comment or direct message if you are interested in being part of this game-changing opportunity!