The SRTR Consensus Conference was a great success! Thank you to all the parents who came and shared their stories and experiences. The information and advice shared was invaluable, and we can't wait to continue working together to improve transplant outcomes for our children. A big thank you also goes out to the SRTR staff for putting on such a wonderful event. We're looking forward to the next conference already!
1. What is the SRTR Consensus Conference, and what are its goals?
The Scientific Registry of Transplant Recipients (SRTR) brought together representatives from various stakeholder groups (patients and families, advocacy, policy, professionals, hospitals, payers, organ procurement organizations, government, and device manufacturers) to make recommendations for better metrics to support the field of organ donation and transplantation at the People Driven Transplant Metrics Consensus Conference. This conference was held on July 18-20, 2022, at the Radisson Blu hotel at the Mall of America in Bloomington, Minnesota.
2. Highlights from this year's conference
Transplant Families represented parents, caregivers, and pediatrics at this year’s consensus conference. We, as a group, asked for longer-term outcomes (10 years instead of 1 or 3 years). We asked for reporting related to congenital issues that led to transplants. And we asked for reporting and metrics related directly to our kids' teen or transition years when they are often moved from pediatric to adult care.
3. How will the SRTR Consensus Conference help improve transplant outcomes for patients?
SRTR is currently digesting all the feedback received through the various sessions and breakouts. An update on progress will be provided in the coming months. Visit the SRTR Consensus Conference updates.
4. Why is this important for you?
SRTR provides a dashboard that represents how well a patient does with the transplant, how long it takes them to get transplanted and many other reports. You can use this information to help you choose a transplant center that may be right for your specific needs. You can use this information to have a discussion with your referring physician when discussing transplants. This information gives caregivers and patients a basis of knowledge of which to begin a patient and family-centered care discussion around an incredibly life-changing decision such as a transplant.
The SRTR Consensus Conference is an important event that brings together experts from around the world to discuss ways to improve transplant outcomes for patients. We are excited to see how the recommendations made at the conference will help improve transplant reporting for patients in the future. If you would like to see for yourself how reporting helps to make a difference in the lives of transplant patients, please visit SRTR today.