UNOS recently released this Liver Values Prioritization Exercise: https://optn.transplant.hrsa.gov/policies-bylaws/public-comment/update-on-continuous-distribution-of-livers-and-intestines/
The goal of this survey is to get COMMUNITY feedback to UNOS and the Liver Committee – it is a rare opportunity for us to amplify the pediatric community’s voice – and a really important one, as the Liver Committee is embarking from here on actually creating the new attribute rating/balance scales for liver allocation under the Continuous Distribution framework.
This is a KEY opportunity to make sure that the pediatric transplant community lets UNOS and the Liver Committee how important PEDIATRIC PRIORITY should be in this new score.
We encourage all of our transplant families to fill this out and pass it on to others. If you have feedback on the survey or find it difficult, please contact us and we can help.