We are working with our friends and partners to give transplant families access to many different medical study and advocacy opportunities. Here are this months:
Pediatric Heart Transplant Families - Out of Pocket Expenses
Pediatric Heart Transplant Families, In an effort to better serve the families of our pediatric patients who have received a heart transplant, we as a Pediatric Transplant Community are asking for your participation in a research study. We know that a heart transplant can lead to many out-of-pocket expenses, some of which are not covered by insurance. By clicking the link below, you will be directed to a survey that will ask you questions regarding your out-of-pocket expenses related to the care of your child who has received a heart transplant. By gaining a better understanding of how much our families pay out-of-pocket, we hope to be able to provide more resources to our transplant families in the future.
Study Contact: Whitney Kaslow, DNP, APRN Pediatric Heart Transplant Vanderbilt Children’s Hospital https://redcap.link/expense
Pediatric Heart Transplant Families - Perspective on Ex Situ heart perfusion (ESHP)
Pediatric Kidney Transplant Families
Pediatric Liver Transplant Families - Starzl PARTNER Project